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Discussion Topic: MoonGoddess's Diary.
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MoonGoddess |
11-12-2008 @ 2:47 PM
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Member
Joined: Jun 2008
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I'm feeling a little brighter, thanks.
I only woke up twice last night coughing but would love a complete nights sleep.
I have made peace with the OH but the Brother is, although speaking, still naffing me off claiming he is far sicker than me, hasn't eaten in days and no-one is caring for him. He is supposed to be flying to Hong Kong on Friday and in some ways I hope he does it means he can't ring me and stay on the phone for an hour at a time and won't get off the phone. Trust me everyone says they find it almost impossible to get off the phone with him - not just me.
I have more antibiotics, though the doctors think the sinasitus is viral and will take however long to clear up and even if I'm feeling rough by the time mum comes home, I shouldn't be infectious!
I have also found out they are changing the carers mum has had for over 3yrs from the council Homebased Care to private agencies - dunno who and have no choice in the matter. As I had a digital camera stolen when Homecare first came in I am now trying to get motivated to start packing away any small stealable bits because we will be having a bunch of strangers in the house - even on Christmas Day. I am not saying they will steal or do things wrong BUT past experience puts my heckles up and I have heard how these agencies cause more trouble than not by not turning up either at the right time or at all - meaning things like mum going to day centre could be disrupted.
If it were not for the fact I would be homeless if I didn't care for mum, I would stop caring because it was all the initial stress which had me in hospital with anaphelaxis (sp) shock twice with penicillin. I wasn't allergic to it before.
Yes I'm moaning but I am really not looking forward to this. Plus continuity is what people with dementia need not new faces and new ways of dealing with stuff.
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Macduff |
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11-12-2008 @ 9:56 PM
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Joined: Oct 2007
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It's all two steps forward and one step back in your life - I don't know how you do it... do you have a halo?
Glad you're on the road to recovery though!
As for moving the small, stealable things; I'd padlock the telly too and get a nice 12 bore shotgun... "set your stall out" from the beginning 
Rachel x
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MoonGoddess |
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11-13-2008 @ 2:45 PM
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Joined: Jun 2008
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Not quite sure how to take that, Rachel. I don't know if you think I've over-reacting or not but my digi camera was my graduation present from the OH and I felt very, very upset about it and never got so much as an apology from Social Services.
They only go into mum's bedroom and I will be in there with them too. However, I don't allow them in the bathroom and they have no reason to go anywhere else in the house - though one girl took a private mobile call once and wandered in the kitchen and lounge. When I asked her to come out please, she just waved a dismissive hand at me to go away.
Some of the girls sometimes forget they are in your home. Most of the Council ones are good though and I wouldn't have any qualms about leaving the room. Trouble is, is with new people you have no idea who they are and from what I have heard there are loads of Eastern European workers who come and go frequently from these agencies. The Council workers tend to stay in their jobs many years.
All I can say is I just hate having all these people in at the best of times, let alone strangers.
Yes, I'm afraid I do have a lot of one step forward 3 back scenarios - that's because when you are a carer you have to do what everyone else says and be there when everyone else tells you to be there. And as rather a free spirit, I find being "told off" by Social Services if I am walking the dog and the carers come and go away again, extremely insulting.
I've even had the police called - it could make a criminal of the most innocent individual.
On top of which, the dog has taken a dislike by barking and growling at one or two of the current carers and I wonder how he will react to completely new faces?
I would wish this all on no-one. If anyone asked me my thoughts on being a carer I'd reply "don't bother, you waste years of your life and are treated like a school child with the threat of phoning the police on you if you don't do as they say. And all for the princely sum of £50 per week".
It's also obvious from this last year mum seems to be happy at the nursing home too. I may find she hates being back home, especially with these new faces.
I'm going back on the Reds either Sunday or Monday by which time I will hopefully feel brighter. Maybe the Reds will calm me a bit too.
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Macduff |
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11-13-2008 @ 4:28 PM
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Joined: Oct 2007
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No, I don't think you're over-reacting - I think it's easy to forget that you're in someone else's home and just presume that nowhere is off limits. It was mean light-hearted (sit with the gun and maybe they'll respect your home / privacy)
I wouldn't trade with you and think that you, and carers all around are some of the most undervalued members of society.
It also seems that just when things seem to be OK, someone comes along and pulls the rug (hence my 2 steps forward)
I did smile about your dog though, he sounds like a shrewd judge of character... maybe you don't need a large gun after all
Rachel x
This message was edited by Macduff on 11-13-08 @ 4:33 PM
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MoonGoddess |
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11-21-2008 @ 11:08 AM
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Joined: Jun 2008
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OK since all this sickness and also because I'm still on antibiotics, I was upset but not surprised when the scales hit 26st 12lb at one point. Before I got ill I was back at 26st 2lbs but I think some of that was muscle.
So back on the Reds 6 days and I am pleased to say weigh in this morning was 26st 6lbs - which effectively means I'm only 4lbs off where I was before being ill.
I saw the doc yesterday who put me on more antibiotics and when I said I hadn't been good whilst really ill, he said "let's just get you better first".
I have the check in with my doc next week for more tablets. I am going to take my BP machine along because I think she used a small cuff again last time.
I am not in any way stressed about putting on. It happens and yes I might eat a bit much at Christmas but I know I can go back to the Reds and they work. Plus if I keep taking the Reds over Christmas they'll make me eat less.
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MoonGoddess |
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12-12-2008 @ 10:43 PM
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Joined: Jun 2008
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The weight loss went up and down a bit but this morning I was back to the dreaded 26st 4lbs.
It's taken nearly a month for the reds to kick back in but I've not been feeling hungry for a couple of weeks.
The change over of mum's care has been terrible. The new company haave barely made all the calls and keep missing the old girls who are there to train them. Lies have already been told and I have been reported to Social Services for refusing to let them use the phone.
The care girls left for the last time tonight. They put mum to bed as the new company hadn't turned up...again.
I've been in tears all week saying goodbye to all the different girls and I'm still in tears now. We are at the mercy of the new company from tomorrow morning.
I've not slept well or eaten properly all week. I've had an allergy attack and I'm so tired.
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MoonGoddess |
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12-15-2008 @ 11:15 PM
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Joined: Jun 2008
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Well the care girls came over the weekend. The care seems ok it's just little things like they want mum on sleeping tablets "to help you get more rest" - her doc won't have that, and tonight one suggested I go out for the evening and get one of them to sit most of the night. Firstly I wouldn't leave people at the mercy of raking through the flat and secondly, Social Services would have to pay for it. They are constantly pushing more services. It's quite sick really.
On to the weight - good news! This morning I weighed in at 26st 1lb which is 1lb less than before I got ill as for some reason I had gone from 25st 13lbs up to 26st 2lbs just before I got ill. I feel so bloated and bigger than I actually weigh though. Gonna try and get the weights going again which excellerated the weight loss. I'm pleased I've effectively lost 7lbs in 2 weeks. It also goes to show that even if something like Christmas or illness gets in the way - I can get back to it!
I have to say though, I've gone back to hardly feeling hungry at all, but I really enjoy my porridge in the mornings! I've also upped my water intake a little as I was barely drinking just after I was ill.
Now I just have to make sure I don't put on too much over Christmas LOL - still I don't drink so that's one saving grace!
Ooh if I could just make it to 25st 13lbs again before Christmas the doc would be very chuffed and so would I!
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MoonGoddess |
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12-17-2008 @ 11:58 AM
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Joined: Jun 2008
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26st exactly today - it's possible I could if I am strict break the 26st barrier before I see the doc on Monday - oh wouldn't that be great?
So ok I wanted to be 2st 7lbs lighter than this for Christmas - but I stalled for 6 weeks which I've now learnt to deal with and I was ill for nearly a month and a half so half the weeks in the last 6 months nothing happened! So technically I'm on target at just over 2st.
I do feel good - I know I'm doing ok and the Reds are working. Until this week I'd not weighed for nearly 2 weeks as well - I just wanna see 25st something for Monday though lol.
I'll let you know the results then.
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